Publisher's Hardcover ©2022 | -- |
Louis, Rick. Family. Comic books, strips, etc.
Ronan,. -2013. Comic books, strips, etc.
Tay-Sachs disease. Patients. Comic books, strips, etc.
Parents of developmentally disabled children. Comic books, strips, etc.
Parents of terminally ill children. Comic books, strips, etc.
A heart-wrenching graphic memoir about losing a child to a rare neurological disorder."This is not a story about grief," writes Louis about his son's battle with Tay-Sachs, an incurable disease. "It is just the story of a little boy who was only here for a short while. And what he was like. And what he meant to us." There's a fairy-tale sense of wonder to such narration, a balance of light and dark that matches the stars-and-space backdrop of Antal's illustrations. With tonal command and a penchant for understatement, the author doesn't pull any emotional punches, but neither does he wallow in tragedy. The artistry underscores the tone of the text, with whimsy and flights of fancy, whether soaring toward the stars or plunging into a dark night of the soul. "I knew there was something I needed to understand, and perhaps share, about my brief, intense, joyful, devastating parenting experience," writes the author at the beginning. He chronicles his journey from initial indifference about parenting to the emotional richness and bonding of early parenthood to the terrible news that Ronan would not have long to live, a fact that ravaged his parents and their marriage. Yet there is joy and even redemption within the elliptical sparseness of the narration, and Antal's illustrations reinforce the impact of the words and fill in some of the gaps. This is not a book narrowly focused on a readership of other parents facing such a rare disorder. Rather, Louis and Antal combine to create an impressive work that explores universal themes of mortality, parental love, selflessness, and resilience. "Being Ronan's father was the greatest thing that ever happened to me," writes the author. Readers will believe him wholeheartedly.A spare account of a short life that will leave readers feeling both uplifted and emotionally drained.
Kirkus ReviewsA heart-wrenching graphic memoir about losing a child to a rare neurological disorder."This is not a story about grief," writes Louis about his son's battle with Tay-Sachs, an incurable disease. "It is just the story of a little boy who was only here for a short while. And what he was like. And what he meant to us." There's a fairy-tale sense of wonder to such narration, a balance of light and dark that matches the stars-and-space backdrop of Antal's illustrations. With tonal command and a penchant for understatement, the author doesn't pull any emotional punches, but neither does he wallow in tragedy. The artistry underscores the tone of the text, with whimsy and flights of fancy, whether soaring toward the stars or plunging into a dark night of the soul. "I knew there was something I needed to understand, and perhaps share, about my brief, intense, joyful, devastating parenting experience," writes the author at the beginning. He chronicles his journey from initial indifference about parenting to the emotional richness and bonding of early parenthood to the terrible news that Ronan would not have long to live, a fact that ravaged his parents and their marriage. Yet there is joy and even redemption within the elliptical sparseness of the narration, and Antal's illustrations reinforce the impact of the words and fill in some of the gaps. This is not a book narrowly focused on a readership of other parents facing such a rare disorder. Rather, Louis and Antal combine to create an impressive work that explores universal themes of mortality, parental love, selflessness, and resilience. "Being Ronan's father was the greatest thing that ever happened to me," writes the author. Readers will believe him wholeheartedly.A spare account of a short life that will leave readers feeling both uplifted and emotionally drained.
Publishers WeeklyA couple navigate their young son’s terminal illness in Louis’s painful but spirited graphic memoir debut. Before marrying, the idea of parenthood daunted Louis, who wonders, “What if I couldn’t protect my kid from all the dangerous, scary, sad things?” But when Louis and wife Emily bring home Ronan, Louis couldn’t be more delighted. Ronan’s “a pretty happy baby,” but his parents notice he isn’t hitting typical developmental milestones. Surpassing their worst fears, an ophthalmologist identifies signs of Tay-Sachs disease, a genetic disorder that affects nerve cells in the brain and spinal cord, and is normally fatal by age four. Tracking Ronin’s prognosis, each page is freighted with unbearable foreboding. Louis darts forward and backward in time, pursuing echoes and themes as he tries to make sense of a senseless grief. His principal subject, though, is the joy he felt being Ronan’s dad. Frivolous comic asides—dad jokes—dispense levity throughout, and Antal’s art balances the lighter tone, sometimes to disarming effect, as when Louis pushes past a retail aisle of childproofing gear, realizing he won’t need any. In this frank telling of a devastating ordeal, it’s the beauty of the too-brief loving moments that lingers. (Nov.)
Starred Review for Kirkus Reviews (Fri Oct 04 00:00:00 CDT 2024)
Horn Book
Kirkus Reviews
Publishers Weekly
WINNER
Outstanding Work of Graphic Medicine (Long Form)
2023 Awards for Excellence in Graphic Medicine
Graphic Medicine International Collective
A graphic novel memoir recounting one parent’s unique and wrenching journey caring for a child with a terminal diagnosis.
When Rick and Emily’s infant son Ronan is diagnosed with Tay-Sachs, an incurable neurological disorder, they are faced with the practical and emotional hurdles of parenting and loving their son—despite the shadow of inevitable loss. Rick Louis narrates this original graphic memoir, with illustrator Lara Antal translating the space that Ronan occupies before, during, and after his life, using flights of fancy and imagination to express the bizarre, heartbreaking, and sometimes even silly reality of human beings suddenly trapped in an impossible situation.
Ronan and the Endless Sea of Stars is a story of warmth and of heartbreak—about finding joy in life, no matter how long or short that life might be.
FINALIST
Book of the Year
Best Adult Non-Fiction
2023 Excellence in Graphic Literature Awards
Pop Culture Classroom
NOMINEE
Best Presentation in Design
2023 Mike Wieringo Comic Book Industry Awards
Ringo Awards